Thoracic Institute
Titanium Rib Program
Related Links
Synthes Spine
www.synthes.com
Synthes Inc. develops, produces and markets instruments, implants and biomaterials for the surgical fixation, correction and regeneration of the human skeleton and its soft tissues and is the manufacturer of the Vertical Expandable Prosthetic Titanium Rib (VEPTR).
National Organization of Rare Diseases (NORD) www.rarediseases.org
The National Organization for Rare Disorders (NORD), a 501(c) 3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
VEPTR – The Titanium Rib Project
www.veptr.com
VEPTR.Com is an unofficial patient support site and is not affiliated with Synthes or the Thoracic Institute.
Titanium Rib Foundation
http://www.toothfairypillow.net/index.php
The Titanium Rib Foundation is a non-profit organization designed to assist children who receive surgery twice a year to expand their titanium rib implants so that their lungs can grow. A portion of every pillow sale goes to support this endeavor.
Infantile Scoliosis Outreach Program
www.infantilescoliosis.org
The Infantile Scoliosis Outreach Program (ISOP) is a program to help connect families of children with progressive infantile scoliosis to resources and information needed to make the best choices possible in the care of their child.